There is no bigger joy for any parent than to hug their little one, but what if even holding your child is causing him severe pain? When Jonah was born, he seemed like a ordinary healthy baby, but then doctors noticed there was a cut on his lip. Soon, there were blisters all over his body! He was diagnosed with the rare condition called Epidermolysis Bullosa.
Jonah’s condition means that even the slightest bit of touch and friction will strip Jonah of his skin. He experiences pains that no one else would ever understand. There is no cure for EB, and Jonah learned to live with it. Despite all of his problems, he is the most funnies and most joyful kid you will ever meet.
Seeing Jonah in pain brought me to tears, but seeing him smile is the most beautiful thing in the world.